Day 6, Dark and Dreary Indoors and Out

We hoped today would be bring better news, but not so. I checked in with Dr. Lewis, the current neonatologist and she reviewed the EEG results with me. She didn't sound as concerned and the results are not definitive, but we'll follow-up with the pediatric neurologist. The bigger news was that she called in a geneticist to look at Cayden, as she's concerned about some of his facial features, which could indicate some kind of genetic issue or syndrome. Basically, he has a long space between his upper lip and nose, and an almost non-existent dimple above his lip, like most people have. He also has very few facial creases, like smile lines, that she said even preemies tend to have. He also has a small chin and mouth, and she's concerned that he's still not doing a lot of breathing on his own, if any. So, I just got off the phone the geneticist, Dr. Golabi, who seems very good and who looked at Cayden today. She got my permission to take clinical photos of him (child model already?!) to send to a colleague in Kentucky who is supposedly very good. We'll probably meet with her tomorrow.

We're taking it one day at a time, one hour, really. I have a permanent lump stuck in my throat, so if I'm not picking up the phone, it's not because I don't want to talk to you, but because I don't think you'll be able to understand me through my blubbering, or because I'm in the hospital or sleeping. Thank you for your support, it means everything to us.