Day 5

So, we knew there would be ups and downs, and today was our first down day. We should've expected it, I guess, after last night's big up. The gist is that an EEG done today showed some "discontinuities". The EEG was done by a pediatric neurologist, to try and determine if the rigidity in his arms and legs is a result of abnormal brain function. All we know right now is that the EEG wasn't perfectly normal, as we'd been hoping, but it doesn't necessarily mean Cayden has neurological problems. They'll continue to assess using other methods, including an MRI once he's more stable. Once again, we're in a wait and see situation.

To top it off, an ultrasound today indicated that Cayden has a double hernia, though that's the least of our concerns, as the nurses reassure us that the surgery is routine. Cayden was breathing a bit on top of the vent this morning, but not at all tonight. The good news of today is that his fingers were much less clenched and his arms seem to have a bit greater range of motion. And he opened his eyes a tiny bit for the first time tonight!

Today was tough, lots of tears from mom, dad is amazingly strong and the best support I could ever ask for. We feel bad for Cayden and just hope and pray that he's okay. We know that things could be worse, but it's so unfair for such a tiny person to have such a rough start in life. Here's hoping for a better day tomorrow.