We went to see Cayden this morning. He stayed very calm while we cupped his head and feet and stretched out his tiny arms. He also opened his eyes the most he has since birth, and we got to see his deep blue, beautiful eyes and hope that he was able to see us.
Nothing has changed, except he's up to 2 ml of breastmilk and has gained 10 grams. We are awaiting the chromosome results, and depending on what we hear, we may decide to do a biopsy to get additional answers.
We made the impossible decision today that we will remove Cayden's ventilator and say goodbye next Saturday. This week will be Cayden's Week of Love. We will shower him with touch, talk, read him books, change his diapers and absolutely cherish our time with our little baby boy. Tonight they are planning to let me hold him, despite all of the lines and tubes. I can't wait!
support group
10 years ago
14 comments:
Paige and Scott,
Please give Cayden an extra squeeze for us tonight and throughout this very special week. We will be thinking of him and his incredible parents every day. Enjoy your time together and know that we are here for you, whenever and whatever you need. We love you all so much.
-Erin, James, and Jack
I'm amazed at your capacity for love and strength in such a difficult time, and I'm confident Cayden knows what a wonderfully lucky little boy he is to have been born to such strong and wonderful parents. Our hearts are with you and we'll continue to keep you in our thoughts and prayers.
Much love,
Chris
My heart is breaking for you guys. We are praying for a miracle. Cayden is so blessed to be in your care.
Paige and Scott,
You have been the most inspirational parents any little boy could ever ask for. Your strength and courage is amazing and we having been loving Cayden with you from afar every step of the way and will continue to do so. Cherish each moment together and remember that you have an extended family sending you love.
Love and prayers,
Ani and Shant
Dear Paige and Scott,
You both are so very special.
Stay strong and loving to one another and especially to Cayden.
We are thinking of you all the time and wishing we were able to do something to help...
Our Love and thoughts are with you.
Aunt Fran and Uncle Steve
Not a day goes by without us thinking about you and praying for you. We are amazed by your strength, love, and courage. We wish we could help you in some way...know that you are always in our hearts.
Sending you much love, especially during this special week---
Michelle and Orazio
Paige and Scott - You have filled Cayden's life with so much love. You are amazing people and amazing parents. We hope you are able to find joy and comfort in this week together - as we know Cayden will. And, we hope you will take comfort knowing that you showed him incredible love and he will always be with you.
Thinking of you always and sending all our love to the 3 of you! Please know that we are always here for you.
Love, Lisa and Tim
Flooding you 3 with love for this special week. Cayden has such a wonderful family, enjoy the time with him, and know that your strength and spirit has touched us so very deeply. We love you,
melis & pete
Just want to let the three of you know how much I love you. You are truly all special people and I want you to know that. I will always be here for you for anything you may need.
I Love you!!
Paige and Scott,
The depth of the love and courage you have shown little Cayden is extraordinary. May you both find comfort and peace in his presence during this very difficult, but very special time together.
Much Love, Leela
You are a mother in each and every sense of the word and your gift of light will shine eternally as all mothers do. Scott is a rock, hold close to him. May you both carry the warm coals of your love inside tonight as your family shelters from the cold winds. Leaves fall and branches bend and sway; but there is only warmth and love inside.
...Truly grateful for you everyday, stay strong mama and papa
- Montes
You are truly inspirational. A mother in every sense of the word. Babies and God are amazing. May you find the strength you need to get through these very difficult moments. My prayers and thoughts are with you all.
Paige and Scott,
Our thoughts are with you and Cayden during this extraordinarily difficult time.
Sending you much love.
Juwen
Paige and Scott, We are sending lots of love to you this week. Both of you are incredible parents and Cayden is so lucky to be so loved. We love you all.
xoxo,
Mayuri and James
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