Last night we learned that Cayden will have an MRI Friday morning. What a way to mark his one week birthday. He will be hand ventilated while they move him to the MRI location and then re-connected to an ventilator there. They will also need to move him entirely into the MRI machine. Knowing that he does not tolerate being moved well at all, we are extremely concerned with how he'll do. The MRI will look at brain structure and might provide some big answers. Then we meet with Dr. Golabi, the geneticist, at 4:30.
You know when you have a bad dream and you wake up and realize it was just a dream? Last night I had a dream that I was having some kind of surgery and no one was scrubbed in and the surgery was taking place in some random non-operating room. It was scary. Then I woke up and that wave of relief that typically washes over was replaced by a realization that our real life nightmare is much, much worse. I don't think I'll ever again experience that wave of relief that "it was just a bad dream."
Cayden
Severin Cayden
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15 comments:
I don't know what to say except that I'm thinking of you guys and I know you'll all get through this together. Cayden's such a tough little guy and he has amazing parents. Hopefully these last couple days of scary news will be followed by lots more good news days and continued progress!
We're thinking of you and praying for all the best. I'm always here to talk, and please let me know if we can do anything!
We love you guys!!!
Lisa and Tim
Paige and Scott. You guys are incredible parents. Cayden definitely realizes already how loved he is. You have a big day ahead of you. James and I are thinking about all of you and sending lots of love!! xoxo
Paige, will be praying this morning for wisdom for the doctors and peace for you and Scott. Honey, you are so strong and brave for little Cayd, hang in there!
We are thinking of you every day and hoping for good news soon. We know how scary it can be to face challenges with someone who you only have been able to touch for such a short time, yet you love like you've been together for your whole life. We know that good things are coming your way and you'll get to experience all the love and joy that parenting brings. You are so strong and yet this is a time when it's hardest to feel strong. Know we are here being strong for you so that you can feel whatever emotions come your way. Thinking of you.
Paige,
I am amazed at your strength and am thinking of you, Scott and Cayden often. I hope today will bring good news, and certainly it will bring you more information. Sending lots of love and hope that each day you are able to find moments of peace to carry you through the more difficult ones.
Bon courage,
Leela
Just a note to say I am thinking of you - and practicing positive thinking! I know today will be difficult but Cayd is so lucky to be so loved and have such a strong mommy and daddy!
Love you all lots. Nicole
We're sending positive vibes this morning. Go Cayden!
Love Doug and Olga
Paige and Scott,
We just heard about Cayden's birth, and wanted to congratulate you both! but also very saddened to hear what you are going through. Our thoughts and prayers are with all of you for good news!
Love, "cousin"Lisa and Dale xo
Paige and family,
You and Cayden are in our thoughts and prayers constantly. I hope that today brings you peace and good news.
Paige ... I am keeping up with you through Erin and the blog and am saying my prayers from Oklahoma each and every day. You are being such an amazing mother and Cayden is so fortunate to have you.
Best,
Shelley Carter
Paige and Scott,
You and Cayden are constantly on our minds. We are praying for you and are sending tons of positive thoughts your way. We will say a mishabarach for Cayden this Shabbat and every Shabbat until he is at home with you.
The Resnicks
Paige, Scott and Cayden -
We just wanted you to know that we're thinking of you. Our thoughts and prayers are with you during this difficult time.
Jeff and Traci
Wish I could be around to give you Scott and your mom a hug. One week already. He's fighting.
A friend of mine who is very spiritual told me in the early days of Abbey to visualize her running and playing in the park. I will do this for Cayden. Luv AJ
Paige, Scott and Baby Cayd,
Thinking of you often, and praying that you will get some good news today. He is such a little fighter, and remember all those little scares he gave you during the pregnancy that turned out to be nothing. It is just his nature (LOL) to continue to scare us, but soon when he is out of the woods, we will all be able to enjoy his and your smiles.
We're thinking of you guys often and praying you receive more information and good news with today's test.
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